I did something today that I haven’t done in almost 10 years.
I wept for my son. My lost son.
My boy doesn’t have Asperger’s. But nor is he severely autistic either. Yes, I’m fortunate because he doesn’t sit in a corner lost to this world, rocking himself endlessly, never acknowledging his parents as I know many other severely autistic children do.
My baby—now 13 and on the brink of entering high school—is in the netherworld between those two extremes. In some ways, he’s like any other young teenage boy. He loves video games, bowling, and pepperoni pizza, although maybe not in that order. Did I mention that he really likes pizza? But anyone who met him would pick up right away that he’s, well,…different. He doesn’t “get” what personal space is. He can’t seem to grasp the concept of inside voice. And sharing with his sisters is dead last in his list of priorities.
Well, maybe he’s not really that abnormal for 13. But still, people notice.
And most of the time, I’m okay with that. It’s my life. It’s his life. We don’t know any thing else. I worked through my mourning of his never having a normal life when he was diagnosed with his challenges at age 3.
But it snuck up on me today. I mourned the life he will never have. He’ll never walk in my door, shy and embarrassed about his first crush. He’ll never watch the news and ask me why there’s so much pain the world. He’ll never get nervous about taking his driver’s test. He’ll never tear open a college application response in anticipation. He’ll never ask a girl to marry him. Most likely he won’t ever get baptized because he doesn’t have the capacity—at this point, anyway—to grasp sin, repentence, grace, and the Cross.
He’ll go to heaven, though. Oh, yes. Aiden has a special place reserved just for his little brother. And that thought, of course, led me back to God and the loaded question: “WHY?”
First, I don’t believe God is some helpless old man in the sky watching our lives go by powerless to act. Nor do I believe he is some wrathful Zeus ready to strike us down when we make the tiniest mistake. I believe God is omnipotent, omniscient, and omnipresent. He’s not confined by time and space. That’s why he’s the great I AM. He exists in all times—past, present, and future—all at once. So he knows, really knows, what’s best for us. And if he gave up his most precious son just so we can know him, what else won’t he do for us (Romans 8:28-32)? He really is the perfect Father.
So why a Tristan with autism? (Don’t you know that will be my very first question when He gives me leave to ask.) Maybe because Tristan makes both my husband and I see what’s really important in life. Maybe because he has taught us patience, compassion, and self-denial. Maybe because he teaches us that love is pure. Maybe because without him as he is now, we would become enamored with the world. Maybe without him as he is now, we wouldn’t make it to heaven. Or maybe not. I don’t know. But God does.
And in 40 or 50 years when I’ve run my race, after I’ve cried a few more times over what I think Tristan missed—or more honestly, what I think I missed—maybe then I’ll understand and finally be grateful that God knew what he was doing all along.
God bless you and your family!
Kim, I don’t always get to read your stories, but I am so glad I was able to read this beautiful and inspiring story about your son. Your perspective on his challenges is a great teacher. It is a perspective we must keep in mind throughout ALL the challenges of parenting, I believe. Thank you for sharing!!
Love, Jen Valeri
You guys are inspiring by your faithfulness
to God and your family.